Wednesday, September 23, 2009

SWF seeking others... did I mention the "S" stands for suffering?

Okay, excuse my dumb wordplay, but welcome to my blog! I'm a 23-year-old female suffering from what I am pretty sure is chronic fatigue syndrome with an immunity disorder component. For those of you who are still reading, that basically means I'm sick... All. The. Time. I just feel like I have the flu almost every day, with some good days in between. I'm still seeing doctors to rule out the other medical options, but as I've been at this for two and a half years now, I feel like I need to try to move on... in case there really isn't a treatment for me.

I've had trouble finding other 20-somethings who are dealing with CFIDS and, following the footsteps of one other blogger, I thought I'd start a blog of my own to help deal with the specific issues that arise from having CFIDS at such a young age. I'll go into more detail later, but for now, welcome, and please use the comment section as much as you like-- let me know you're out there!



  1. Chronic Fatigue Syndromoe reminds me of when I was on my second epilepsy medication and I was never really awake for 4 years. I remember one morning I suddenly woke up really really early and I felt wide awake and alert. I thought 'Is this how normal people feel??' and then, as if I had jinxed myself, was immediately exhausted again. It was a shining moment in a sea of cloudy thinking and yawning and naps during gym class. So then I switched meds. I so wish it could be as simple for you! But as it's not, maybe you should get addicted to uppers instead. I kid, I kid!
    At least now we can be blog friends while I'm in India!! YAY!

  2. Dear SWF,

    I promise not to ask "How are you?" anymore. It is quite silly of me to ask; especially since I know you will simply heave a heavy sigh and gratuitously roll your eyes behind the telephone in a polite attempt not to scream “I’M NOT OKAY!!! OKAY??? Sheesh!” at the top of your lungs.

    I know you are wiped when ask…but I ask anyway. I suppose it’s a learned habit; an impersonal form of traditional communication. I caught myself asking a fellow elevator rider that question this morning, not truly caring what their response would be. Simply asking to break the awkward silence that was amplified by their heavy breathing for the few moments we would be confined to the same space together.

    You are brilliant and a bundle of fun! Not comparable with said elevator companion. You are a true companion, SWF. I hope that through your new blog you are able to find the support and the outlet you need to deal with this disease.

    I will preface all further phone conversations with greetings like:

    "Whazzz Up?!", "What's shakin' bacon?" and "Holla" in hopes of evoking a laugh or even possibly a snort.

    Your new blog follower,

  3. I know how much fun comments are, so....
    here's me commenting!
    Plus, I miss you. I hope we get to see each other again some time eventually and hang out...

  4. Hey Robyn,

    I just found your blog through Lori's "Living Chronically." Are you the Robyn on Chronic Babe Forum ME/CFS group? I am going to assume so. I have to say I was very excited both when you joined that group and when I saw your blog. I too am a 20-something with CFS who is trying to find other people my age who can relate. The support group in my area is all women my mum's age. They're lovely, but very different life stage. Anyway, I look forward to seeing what you post in the future! :-)



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