Saturday, October 10, 2009

Some interesting CFS news, stolen from another blogger ;-)

Virus Linked to Chronic Fatigue Syndrome

Hmm. I wonder if you can ask to be tested for this retrovirus in your everyday LAbcorp? I'm headed there on Monday for my final round of lupus testing (though I'm pretty sure it will be negative-- I'm like 90% convinved I have CFIDS and my doctors are just being really thorough).

They also suggest antiviral drugs as treatment, similar to what HIV-patients would take. I'm an English-major, so excuse me for any gaps in the science, but it sounds like an interesting proposition. Think they'll have them out in time for me to go back for Wake's spring semester? *fingers crossed*


  1. i think i have a house for you. call/email for details if you think you're coming back!!

  2. Hi Robyn!

    I'm glad you were able to find my blog! Yes, there are MANY others out there and I think your idea for writing a blog is right on - fun and therapeutic.

    One way to find others is this: once you've located a blog related to CFIDS, click on it's followers. Chances are they have a blog about the same thing. From there you will be able to meander your way through. You can also go to sources such as

    From time to time, I have a little whine fest on my blog (as a caretaker and mom of a 16 yr. old afflicted with CFS), but for the most part I try to inject a little humor when I can.

    Do you mean Wake as in Wake Forest? Just wondering. We're originally from NC. :)

    Glad to meet you! Lori

  3. Hi Robyn! Thanks for dropping by tumblyday and offering your support. I extend the same to you!

    Just a little factual information about the XMRV discovery: there is no clinical test for XMRV (standard panel or otherwise) and the drugs for HIV are powerful and potentially toxic. They have not been tested in CFS patients, as far as I know. I hope you get some answers in your search for a diagnosis.

    Remember that there is still hope!!



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